When I was diagnosed with Type 1 I spent a lot of time
reading message boards on the internet because in my experience the best way to
learn about a disease is from the people who live with that condition. One of the first things I saw, repeatedly,
was the insistence that people with T1 can eat anything they want. Want a piece of cake? Figure out the carb count, take the
appropriate dose of insulin and you’re good to go. I found this information fascinating because
I’d been eating a low carb diet for years and knew well that carbohydrates raise blood
sugar. If my body no longer made the
insulin I needed to remove sugar from my blood, why would it be OK to eat any carbs
I wanted?
One of the earliest blog posts I wrote was called “Yes,
I Can Eat That.” I discussed my
typical low carb way of eating but I also responded unequivocally to the “can
you eat that” question that well-meaning friends and family sometimes ask. The reality is that the diet debate is a
regular one in the Type 1 community and people on either site can be quite
passionate about their perspectives.
Many doctors encourage their patients or the parents of patients to
continue living “normally” after a diagnosis.
After all, insulin can be used to account for the sugar in meals, so why
should anyone be denied their favorite foods?
But here’s the catch: the insulin
I’m injecting before or after a meal isn’t the same insulin my body used to
make. It doesn’t work the same as what
your body makes. A healthy pancreas
produces the necessary insulin quickly, and it rapidly escorts sugar out of the
blood stream. The synthetic insulin I
inject takes effect more slowly and works its magic over several hours. That means that even if I give myself exactly
the right amount of insulin for whatever I’m about to eat, my blood sugar is
going to go up. Maybe up and then up some
more depending on the food, before the insulin brings me back down hours later. The more time I spend with my blood sugar
running high, the more chance there is for damage…to my vision, my nervous
system, etc. I’m trying to avoid that
damage.
For me, the way to do that is to skip the carbs in the first
place. If I minimize the food I’m eating
that messes with my blood sugar, the easier it is for me to keep that sugar in
healthy place. I still need to inject
insulin for pretty much everything I eat because protein raises blood sugar,
but it’s a lot less insulin and food that has a lot less impact on me in the
first place. I see people online who say
they can eat “normally” and maintain good blood sugar and a fairly low
a1c. I’m not saying it isn’t possible; it
just isn’t possible for me. It’s similar
for me to any debate about approaches to dieting for weight loss. I know people who’ve had great success with
Weight Watchers, but it’s not for me.
Within the first day or two, I’d likely be awaiting trial for
homicide. Finding what works for you
makes the most sense whatever the context.
For me what works is eating a high fat diet with minimal carbohydrate
from any source, and I’ve got the Dexcom trends and a1c to prove it.
The problem that happens online when people discuss their dietary choices is that people tend to be convinced that their way is the only right way. There are those that think low carb is a horrifying way to live, those who believe that high fat is dangerous, and those that believe strongly that a "normal" diet is their right as a Type 1. On the flip side there are people like me who believe low carb is the easiest choice...but even within that community there are debates about whether high fat or high protein are the way to go. I believe there's no one answer for everyone, but I wish everyone knew there were options. After all, if Weight Watchers doesn't work there's always South Beach, or the Mediterranean diet, or any number of other choices. The same is true with Type 1.
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